Tag Archives: dying matters week

Life Awareness Week

I feel caught in a perfect storm of life’s difficult-to-deal-with-moments.

Every seven days it seems there’s a new awareness week for something.

This weekend marks the end of Dying Matters Week and Mental Health Awareness Week and begins the start of Dementia Awareness Week – three topics on which I have a current speciality.

Get me on Mastermind this instant and I’d answer every question. That’s how “aware” I am!

Having lost my wonderful mum less than four weeks ago in sudden, unexpected and traumatic circumstances – yes I’m going through the numbness, the “it can’t be true” questioning, the guilt of feeling in some way to blame, responsible, at fault for not doing more to prevent it, mum having died at my home, in my care.

The knowledge that professional help was sought on several occasions and that paramedics were there when mum died, because I called them, does little to stop me going over the course of events and trying to change them.

I feel physically ill, my body is doing strange things – even down to drastic bleeding from my gums a few days later. I go into physical spasms of grief, screaming aloud in my sleep, sobbing in a supermarket car park. This is not about wiping the tears away with a tissue.

I’ve been totally lost for words, unable to string a coherent reply to a question. Bad dreams, nightmares, getting up in the middle of the night, forgetfulness, I can tick those boxes, that’s if I remember and focus hard enough.

And the flashbacks and intrusive thinking, that’s all part of it.

That side of it, I was pretty accomplished at already. For 25 years I’ve suffered from bouts of depression, including at times self-harming because of the mental agony I’ve felt. My recurring anxiety, spiralling, hamster-wheeling doubt was diagnosed as OCD four years ago, with childhood traumas recognised as being part of the root cause, leading to 20 weeks of intensive therapy.

It helped me a lot, in learning how to deal with it, but it never totally goes away, so yes, I’d say I have a pretty solid awareness of mental health issues.

Dementia, is one of my identified trigger points – the scary demon in my basement. It’s something I’ve been terrified of since a child, when my lovely grandmother’s increasingly eccentric behaviour was put down to being “senile” with very few people at that time bothering to try to understand.

Thankfully, dementia awareness has increased massively since those dark days and there’s been a shift in public consciousness, research and care.

I learnt lots more first hand about this cruel disease, when my dad was diagnosed in 2011 at the age of 70 with vascular dementia, dying just over three years later. It was a journey of mixed emotions, challenges, despair, anger, grief, but also laughter, compassion, enlightenment, and love.

This Dementia Awareness Week remains hugely relevant and important to me – my dear husband John having recently been referred by his GP to the local memory clinic. The appointment is in a few weeks’ time, 20 years to the day that we got married. Happy Anniversary Darling!

It will also be a few days after the biggest event of my life, a women only marathon, which I’ve taken a lead role in organising and aim to take part in.

It’s called Women Can.

I love the positive affirmation of that simple straightforward statement.

The medals arrived yesterday, 450 of them glistening in a box. They made me think about all those women out there, going through their own journey of awareness, issues affecting their lives, but still signing up to our event and taking part, because through running, endurance running in particular, pitting yourself against that challenge, you learn that women can, men can, we all can.

It’s about getting through the tough times yourself and helping others through them also.

About being life aware.

Thanks to all the special people who are life aware, who have been, and are continuing, to be there for me.

*Special thanks to Sue, a counsellor with the bereavement charity Cruse, for her recent clarity and insight and her recommendation to visit the website of the charity Sudden Death – awareness definitely helps! For information about mental health issues go to Mind. For information about dementia research go to BRACE.

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